February 10, 2013 at 2:17 PM #954
Hi, I am feeling not as alone in the hhd world as I was before I read some of the last few posts!
Had hhd now for 6 years see the dermatologist every 4 weeks, also suffer weeping wounds and live in mepilex dressings nearly all the time. I wouldn’t be able to function on a daily basis without the protection of these dressings. I take meds everyday and been on most mentioned even cyclosporine ! Had a pre op for co2 laser treatment , I’m really hoping that in the long run its gonna give me even 1 day without hhd. I feel I’m the guinea pig for my children as its 50-50 whether they get it or not. I hate living with this I have no quality of life. I’m a 33 year old female in the uk . Anyone who has had laser surgery for hhd is there anything I need to be aware of ?February 16, 2013 at 12:49 PM #1066
Sorry can’t help with your question but I see you’re in the UK. Are you able to get this laser treatment on the NHS?February 24, 2013 at 4:11 PM #1071
Yes, I initially applied for funding to get laser surgery in Leeds but then my dermatologist explained that I’m getting it on the NHS. I’ve had a pre-op and awaiting a letter for a date to go in . Initially they are going to laser a small section to see how my skin reacts first.February 27, 2013 at 11:45 AM #1079
I have had laser surgery twice. The healing process was extremely painful after surgery. Both times it helped the exact area treated for about 5-7 years. I found, however, that the skin on the edge of the treated area broke out continually.
I would rather get a skin graft than another laser surgery
ymmv (your mileage may vary)Jules, President, HHD SocietyApril 2, 2013 at 10:58 AM #1183
Just had lasersurgery on two test areas to see how my body coped with it. I had these done under local anaesthetic and felt no pain at all afterwards! The other lesions that hadn’t been lasered hurt more . I m hoping to see some results in 4 weeks and at that point shall decide whether get the rest done. Will keep posting my findings .September 23, 2013 at 10:16 AM #1381
Just a question… My dermatologist said that the laser proceedure will turn the areas to a scar. What is your experience with scarring afterword? I am convinced that a scar would be much easier to deal with than the pain and weeping of these breakouts.September 29, 2013 at 9:25 AM #1383
I did not scar, but had HHD breakouts along the edge of the lasered area. The surgery “lasted” for about 8 years and then the area began breaking out as before.
JulesJules, President, HHD Society
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