HHD Society

Our Michigan (US) nonprofit corporation and registered charitable trust, Hailey-Hailey Disease Society, was formed in January of 2006 by the managing sub-group of the HHD Support Group, TalkHHD, a Yahoo Group.

Membership dues ($50.00 annually). We offer a secure, verified PayPal account link to make giving easy, or send your dues and/or gifts directly to us. Information is on every page of our website.

We appreciate your generosity!

>IRS Forms< for 2006 – 2012 are available to view online.

>HHDS Member Website<

Patient Letter to Healthcare Team

April 2007:

The HHD Society is pleased to offer patients a “Letter to Healthcare Team” that they can fill out with their medications and present to a new doctor’s office or when visiting a new clinic or hospital to help their healthcare team better understand their HHD.

Annual Meeting: June 21, 2014 @ 5 PM CDT *Date/Time Change*

This year’s Annual Meeting of the HHD Society will be held June 21, 2014 at 5:00 PM CDT (US Central Daylingt Time)  at: Hawthorn Suites – Hoffman Estates, IL (link below) Following the meeting we will be attending Medieval Times (7:30 … Read More

Annual Meeting: May 19, 2012

The HHD Society Annual Gathering and meeting will be held at Lakeside Motel & Cottages May 19, 2012 at 6:00 PM EDT.  All members and friends of the Society and its support groups are welcome to attend the Gathering. Members are encouraged … Read More

Annual Meeting: May 21, 2011

The HHD Society Annual Gathering and meeting will be held at Lakeside Motel & Cottages May 21, 2011 at 6:00 PM EDT.  All members and friends of the Society and its support groups are welcome to attend the Gathering. Members are … Read More

Annual Meeting: June 19, 2010

All HHD Society members, subscribers of TalkHHD, the HHD Vanilla Forum and their families and friends are welcome to attend our yearly HHD GATHERING in June 2010. During the Gathering, the Society takes a little time out to hold its: … Read More

Annual Meeting: May 16, 2009

All HHD Society members, subscribers of TalkHHD, the HHD Vanilla Forum and their families and friends are welcome to attend our yearly HHD GATHERING in May 2009. During the Gathering, the Society takes a little time out to hold its: 4th … Read More