Support

We offer you a variety of ways to connect with other HHD patients and find the information and support you need…

Patient Letter to Healthcare Team

April 2007: The HHD Society is pleased to offer patients a “Letter to Healthcare Team” that they can fill out with their medications and present to a new doctor’s office or when visiting a new clinic or hospital to help … Read More

Common Remedies

Common Over-The-Counter Remedies Here is a list of easy to find, over the counter (in the US) items that some of our members find useful. Remember, what works for one may not work for another… NOTE: This list is offered … Read More

Yahoo Support Group: TalkHHD

If you or a loved one have HHD, we welcome you to join our Yahoo Support Group. TalkHHD began in 2003 after the haileyhaileydisease.com email listserve was disbanded. The group moved to Yahoo and this website and is still the … Read More

HHD Forums

Visit our forums using the menus above where you can read and post messages – no email address needed to read as a guest. If you wish to post, you will need to login. Started in January 2006, our online … Read More

Contact Us

If you have comments, ideas questions or just want to say “hi” – contact our webmaster. If you have ideas for new material, know of a good link to add to our list or notice a mistake or broken link … Read More