April, 2013 we kicked off a new fundraising campaign on CrowdRise.com:
Thanks to the efforts of our volunteer Treasurer, we have been listed on GuideStar and were able to start this public campaign to raise awareness and funds for our cause!
His message, which can also be shared from our Facebook page follows:
Hailey-Hailey disease (HHD), also known as chronic benign familial pemphigus, is a genetic disease which causes a defect in the skin cell Calcium pump which in turn causes the skin to blister and fall apart. Have you ever seen the movie “The Incredible Melting Man“? This 1977 American science fiction horror film is about an astronaut whose body begins to melt after he is exposed to Saturn’s radiation. To HHD sufferers sometimes the disease can feel like that.
WE NEED YOUR HELP! At this time the only income that the Hailey-Hailey Disease Society has is through yearly membership to the Society and donations. Please take the opportunity to use your browser and visit:http://www.Crowdrise.com/gimmesomeskin/fundraiser/hhdfoundation Our fundraiser is titled Gimme some Skin. Please donate toward helping us continue our mission of awareness, education and support. Then send this email to other friends and family whom might be able to help. Remember all donations are tax-deductible.
I hope that we can count on your support. Thank you,
Hailey-Hailey Disease Society
B Hiscox, Treasurer