More Links

LINK TITLE	DESCRIPTION
Hailey-Hailey Disease Society	Michigan non-profit corporation formed to provide support, education and correct information to HHD patients, the healthcare community and the public regarding Hailey-Hailey Disease. Outreach includes this website, the website forum and management of TalkHHD, a groups.io Support Group.
TalkHHD Support Group	International group of over 500 members. Support through group email. JOIN TALKHHD @ groups.io
AAD: Find a Derm	American Academy of Dermatologists. Find a doctor link. Recommended.
OMIM – Hailey-Hailey Disease #169600	Description of Hailey-Hailey Disease. Very technical. Large bibliography. Checked 2019. Last updated 2005, reviewed by carol 2015; starting to become outdated. Recommended.
OMIM – ATP2C1 *604384	Mutations in ATP2C1 cause HHD. Description and list of mutations found. Very technical. Large bibliography. Checked 2019. Current. Recommended.
The British Association of Dermatologists	Pretty good description, but understates the nature of outbreaks. Checked 2019. Recommended.
The National Registry for Ichthyosis and Related Disorders	Site hosted by University of Washington (USA) and featuring a Registry (now closed) for sufferers of Ichthyoses and related disorders including Hailey-Hailey Disease. Also has links to information and resources about Ichthyosis. Checked 2019.
Dermatlas	Dermatlas – enables health care professionals and patients to access high quality dermatology images on the Web. Type “hailey hailey” in the search box. Checked 2019-link broken.
Who Named It .com	Checked 2019. Link OK.
Dermnet – New Zealand	Nice site by the New Zealand Dermatological Society – has a section on HHD under ‘Skin Conditions’ Checked 2019. Recommended.
The Doctor’s Doctor	A collection of literature citations, but getting VERY VERY outdated – last update 2002. Very technical description of the disease (for medical types) – don’t let it scare you. Checked 2019. Not Recommended – our citations are more recent.