HHD Society

Our Michigan (US) nonprofit corporation and registered charitable trust, Hailey-Hailey Disease Society, was formed in January of 2006 by the managing sub-group of the HHD Support Group, TalkHHD, a Yahoo Group.

Membership dues ($50.00 annually, membership year April to April). We offer a secure, verified PayPal account link to make giving easy, or send your dues and/or gifts directly to us. Information is on every page of our website.

We appreciate your generosity!

>IRS Forms< are available to view online.


Patient Letter to Healthcare Team

April 2007:

The HHD Society is pleased to offer patients a “Letter to Healthcare Team” that they can fill out with their medications and present to a new doctor’s office or when visiting a new clinic or hospital to help their healthcare team better understand their HHD.

Gimme Some Skin – CrowdRise Fundraiser

April, 2013 we kicked off a new fundraising campaign on CrowdRise.com: Gimme Some Skin. Thanks to the efforts of our volunteer Treasurer, we have been listed on GuideStar and were able to start this public campaign to raise awareness and … Read More