Support

The HHD Society is pleased to offer patients a “Letter to Healthcare Team” that they can fill out with their medications and present to a new doctor’s office or when visiting a new clinic or hospital to help their healthcare team better understand their HHD. Letter to Healthcare Team

Common Over-The-Counter Remedies Here is a list of easy to find, over the counter (in the US) items that some of our members find useful. Remember, what works for one may not work for another… NOTE: This list is offered under the terms of use of the Website. The Website, Society and/or TalkHHD do not endorse the…

If you have comments, ideas, questions or just want to say “hi” – contact our webmaster. If you have ideas for new material, know of a good link to add to our list or notice a mistake or broken link on the website – PLEASE contact our webmaster. For brochure requests in the U.S., we…

If you or a loved one have HHD, we welcome you to join our Support Group.  TalkHHD began in 2003 after the haileyhaileydisease.com email listserve was disbanded. We are now located on a totally ad-free group website, groups.io.  Generous members of the HHD Society fund the TalkHHD group. Groups.io was able to import all of…

  Please join our support group TalkHHD on groups.io.  Please request a membership by contacting us >>HERE<<.  Make sure to tell us who you are, your email address and why you would like to join. The TalkHHD group is fully moderated. Thank you!