If you or a loved one have HHD, we welcome you to join our Support Group. TalkHHD began in 2003 after the haileyhaileydisease.com email listserve was disbanded. We are now located on a totally ad-free group website, groups.io. Generous members of the HHD Society fund the TalkHHD group. Groups.io was able to import all of our posts from yahoo when those groups shut down.
The group is totally moderated by the HHD Society. An active email address is needed to be a part of this group.