If you or a loved one have HHD, we welcome you to join our Email Support Group. TalkHHD began in 2003 after the haileyhaileydisease.com email listserve was disbanded. The group moved to Yahoo, then groups.io and this website and is still the largest HHD support group in the world with over 800 members.
This group is totally moderated by the HHD Society. An active email address is needed to be a part of this group.