More Links

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Hailey-Hailey Disease Society 501(c)(3) nonprofit organization formed to provide support, education and correct information to HHD patients, the healthcare community and the public regarding Hailey-Hailey Disease. Outreach includes this website, the website forum and management of TalkHHD, a Yahoo Support Group.
TalkHHD Support Group International group of over 500 members. Support through group email and annual Gatherings (mid-May).
OMIM – Hailey-Hailey Disease #169600 Description of Hailey-Hailey Disease. Very technical. Large bibliography. Checked 2013. Last updated 2005; starting to become outdated. Recommended.
OMIM – ATP2C1 *604384 Mutations in ATP2C1 cause HHD. Description and list of mutations found. Very technical. Large bibliography. Checked 2013. Current. Recommended.
Excellent, authoritative and VERY technical description of the mutations and aberrant protein causing HHD. Checked 2011. Recommended. No longer available to the public.
The British Association of Dermatologists Pretty good description, but understates the nature of outbreaks. Checked 2013. Recommended.
The National Registry for Ichthyosis and Related Disorders Site hosted by University of Washington (USA) and featuring a Registry (now closed) for sufferers of Ichthyoses and related disorders including Hailey-Hailey Disease. Also has links to information and resources about Ichthyosis. Checked 2013.
emedicine online. Comprehensive medical description of HHD. Checked 2013. Excellent. Recommended.

Information on HHD has been updated. Links given are mostly unrelated to HHD, but the text is excellent. Checked 2013. Recommended.
Dermatlas Dermatlas – enables health care professionals and patients to access high quality dermatology images on the Web. Type “hailey hailey” in the search box. Checked 2013.
Who Named It .com Checked 2013. Link OK.
 Dermnet – New Zealand Nice site by the New Zealand Dermatological Society – has a section on HHD under ‘Skin Conditions’ Checked 2013. Recommended.
The Doctor’s Doctor A collection of literature citations, but getting VERY outdated – last update 2002. Very technical description of the disease (for medical types) – don’t let it scare you. Checked 2013. Not Recommended – our citations are more recent.

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