| LINK TITLE |
DESCRIPTION |
| Hailey-Hailey Disease Society |
501(c)(3) nonprofit organization formed to provide support, education and correct information to HHD patients, the healthcare community and the public regarding Hailey-Hailey Disease. Outreach includes this website, the website forum and management of TalkHHD, a Yahoo Support Group. |
| TalkHHD Support Group |
International group of over 300 members. Support through group email and annual Gatherings (mid-May). |
| OMIM – Hailey-Hailey Disease #169600 |
Description of Hailey-Hailey Disease. Very technical. Large bibliography. Checked 2013. Last updated 2005; starting to become outdated. Recommended. |
| OMIM – ATP2C1 *604384 |
Mutations in ATP2C1 cause HHD. Description and list of mutations found. Very technical. Large bibliography. Checked 2013. Current. Recommended. |
 |
Excellent, authoritative and VERY technical description of the mutations and aberrant protein causing HHD. Checked 2011. Recommended. No longer available to the public. |
| The British Association of Dermatologists |
Pretty good description, but understates the nature of outbreaks. Checked 2013. Recommended. |
| The National Registry for Ichthyosis and Related Disorders |
Site hosted by University of Washington (USA) and featuring a Registry (now closed) for sufferers of Ichthyoses and related disorders including Hailey-Hailey Disease. Also has links to information and resources about Ichthyosis. Checked 2013. |
 |
emedicine online. Comprehensive medical description of HHD. Checked 2013. Excellent. Recommended. |
|
|
Information on HHD has been updated. Links given are mostly unrelated to HHD, but the text is excellent. Checked 2013. Recommended. |
| Dermatlas |
Dermatlas – enables health care professionals and patients to access high quality dermatology images on the Web. Type “hailey hailey” in the search box. Checked 2013. |
| Who Named It .com |
Checked 2013. Link OK. |
 Dermnet – New Zealand |
Nice site by the New Zealand Dermatological Society – has a section on HHD under ‘Skin Conditions’ Checked 2013. Recommended. |
| The Doctor’s Doctor |
A collection of literature citations, but getting VERY outdated – last update 2002. Very technical description of the disease (for medical types) – don’t let it scare you. Checked 2013. Not Recommended – our citations are more recent. |
